It goes like this. Maybe today, maybe today I will reach him. If not today, maybe he'll be ready for kindergarten. Not there yet? Maybe when he's 6 or 7. Maybe when he's 10. Maybe. And those milestones you wait for never come and you wonder if you'll grow old still thinking maybe today, maybe today.
Now here is something helpful, I heard about something called a special needs trust. That is something I need to learn about. I have been worried about my death. I dodn't know what resources were out there. I think I will look into that.